Marfan Syndrome

jimmyboy said:
No, he'd be in debt.
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Small update:

Got a second opinion from the doctor I saw back in 2004. This guy specializes in marfans. He looked at the chest xray and echocardiogram and said that the aorta has only grown .1mm not .4mm like the other doctor says. He answered a lot of my questions and spent a good 2 hours explaining advances in treating marfans. Also issued a MRI scan and set me up with an appointment to see a Genetics doctor. Wants to do a MRI scan as it can provide a more accurate reading on aorta size

Glad I met my deductable for the year lol, MRI scan is like 2grand.

Side note, my pulse has dropped to 54 since I started taking beta-blockers. Was around 85 before.
 
Eh not *really* low if you're in shape, but it definitely went from higher than normal to lower than normal... I certainly can't tell you if it's a bad thing... but if you're not light headed when you stand up the lower is probably better.
 
Jesus, that sucks. At the very least you should get some sort of superpower as a trade off. X-Ray vision, telekenesis or something at least.
 
Am I misunderstanding this or do you have to avoid anything that increases your blood pressure ? :bleh:



:cry:



Keep us posted and catch them positive vibes I just sent !
 
.nox said:
Am I misunderstanding this or do you have to avoid anything that increases your blood pressure ? :bleh:



:cry:



Keep us posted and catch them positive vibes I just sent !
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its not so much watching the blood pressure as it is watching strenuous activity. anything that can put a heavy strain on the heart. its weird though because they said that aerobic exercise is good but weight lifting would be very bad. also to avoid contact sports such as football.
 
If I had to go I would hope it would be during sex. So rock on buddy! :lol:
 
Cyko said:
If I had to go I would hope it would be during sex. So rock on buddy! :lol:
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sex or on a rollercoaster. doc told me no more rollercoasters. i think he could tell i was not listening when he said that.
 
Sex...or a rollercoaster? Why not combine the two? Don't know how, but if you know you're going to go anyway I'm sure a way could be found :lol:




Disclaimer:
Don't know your medical history, so do not try the above unless you are truly going to bite the big one. That is all.
 
heh. find a nice old wooden rollercoaster. little effort required ;p
 
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