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Old May 2, 2019, 11:57 AM   #511
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methimpikehoses
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Fantastic, Munk0r.
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Old May 2, 2019, 02:54 PM   #512
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Nunz so sorry for your loss.
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Old May 2, 2019, 03:50 PM   #513
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Holy crap! The hospital just called. They are writing off $100K of the bill. That leaves us with $50K, $22K of which has already been raised. Still don't know where the other $28K is going to come from, but it's still a huge relief.

Also, we got a 2nd opinion from one of the leading RPLND surgeons in the country. He's recommending that we DON'T have the surgery right now. We should monitor the lymph node over the next few months.

WOOT! Thats awesome!
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Old May 2, 2019, 07:24 PM   #514
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Originally Posted by Munkus View Post
Holy crap! The hospital just called. They are writing off $100K of the bill. That leaves us with $50K, $22K of which has already been raised. Still don't know where the other $28K is going to come from, but it's still a huge relief.

Also, we got a 2nd opinion from one of the leading RPLND surgeons in the country. He's recommending that we DON'T have the surgery right now. We should monitor the lymph node over the next few months.

Yeah! Everything's coming up Millhouse...er...Munkus
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Old May 2, 2019, 10:42 PM   #515
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So sorry for your loss Nunz. Been swamped but this thread was always on my mind since big news was going to happen and so glad that things are looking up!
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Old May 16, 2019, 01:21 PM   #516
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My wife posted this update on the GoFundMe page. For anyone interested, here ya go:
Quote:
I have been getting texts and questions from many of you, so I thought I should probably do an update. Unfortunately, there isn't much new.

I spoke with his oncologist on Monday, at my request. I have been concerned that Brendan's lymph node is marginal, and yet we are supposed to go ahead with surgery. She heard and understood my concerns. She said that doing surgery is protocol in this situation but that we make the final decision. She is 100% okay with watching and waiting. We are currently scheduled to meet with the surgeon on June 4, in Colorado. She would like for us to keep that appointment, so that we can get all of the information. The surgeon is an expert in this field and thinks we should move forward. He also knows we are hesitant. I fully expect a big song and dance sales pitch, but we will go and we will listen and ask questions.

On the other end of the spectrum, we contacted Dr Einhorn in Indiana. He is the one who wrote these protocols that the doctors today use. He reviewed Brendan's case (at a high level) and recommended we just monitor it and hold off on surgery.

The RPLND surgery is extremely specialized and highly invasive. The potential side effects would be devastating. While the overall outcome would be a cure, we are proceeding with caution.

Brendan has follow up blood work happening on May 29. They will be checking his tumor markers. If his lymph node is acting up, it should show elevated markers. We will be watching that monthly with a CT every 3 months, unless otherwise needed.

Then long and short of it is that we still don't know. There hasn't been enough evidence of need for a tip of the scales into needing the surgery, at this point. (At least for us) We are moving forward, one day at a time. For those of you who pray, please pray for guidance and clarity for us as we make this huge decision.

For those who would like to show their support, Brendan's favorite saying is available on t-shirts and hoodies! It's a fun way to help his cancer fund and raise awareness of this way too common disease. Oh, and please please PLEASE tell the men and boys in your life to check themselves monthly!!!

https://www.shieldcharities.com/prod...brendan-martin
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Old May 27, 2019, 08:46 AM   #517
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We paid off the hospital. That emptied out our donation bucket completely, but at least it's done. We still have a $2000 urologist bill and a $1080 anesthesiologist bill. On Saturday we received a check from the Jadyn Fred Foundation for $1674, plus a few other folks donated to GoFundMe. That gave us enough to pay off the Urologist.

Just when you start thinking that the world sucks, people amaze me with their generosity. I'm looking forward to being on my feet again financially, so I can pay all this forward.
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Old May 27, 2019, 08:48 AM   #518
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happy to hear man
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Old May 27, 2019, 08:52 AM   #519
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That is great news.
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Old May 27, 2019, 03:33 PM   #520
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Amazing news brother!
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Old May 27, 2019, 03:45 PM   #521
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Quote:
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Just when you start thinking that the world sucks, people amaze me with their generosity.
So many people came forward to support because they know the kind of person you are, and I'm sure you understand this. You get back what you put in. Much love.
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Old May 27, 2019, 04:24 PM   #522
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Quote:
Originally Posted by bob saget View Post
So many people came forward to support because they know the kind of person you are, and I'm sure you understand this. You get back what you put in. Much love.
Indeed.
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Old May 27, 2019, 06:40 PM   #523
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Awesome news! So great to hear!
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:heart: I took a few weeks off, but Rage is like a home away from home.
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Old May 28, 2019, 07:38 AM   #524
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Quote:
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So many people came forward to support because they know the kind of person you are, and I'm sure you understand this. You get back what you put in. Much love.
All those manches paid off.
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Old May 28, 2019, 11:18 AM   #525
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You got back what you put in.
So he got back 3 inches?
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Old May 28, 2019, 03:33 PM   #526
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Amazing news!!
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Old May 28, 2019, 03:58 PM   #527
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So he got back 3 inches?
Pfft. That was just the tip.
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Old May 28, 2019, 09:27 PM   #528
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Congrats Munkus.
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Old May 30, 2019, 03:19 AM   #529
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Nunz so sorry for your loss.
Likewise, sorry for your loss, Nunz. Life can be really cruel sometimes. Not sure what else can be said.
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